CRPS/RSD is an awful disease that affects the entire nervous system. It's so underdiagnosed and usually takes years for a Doctor to make the diagnosis. It's a disease that causes so much pain and requires an entire lifestyle change. There is hope but not a cure. It requires a lifelong battle but you must keep fighting! I will keep up the fight..the disease will not win! I now have a great Doctor and in good hands. I have faith that this treatment will work!

Tuesday, September 22, 2009

Another Rough Week

It doesn't seem to end with me. When I start to feel a little better, something else happens. I am finally feeling better from the bee sting incident. That took a while. My back has been bothering me for about a week now (since the bee sting) and I couldn't figure out what I did. I thought maybe I twisted wrong or something. The RSD is causing everything to go wrong and I am also pretty weak. I did lots of coughing and it seems that the coughing aggravated my back. It kinda worried me because it's in the middle area again. It finally started feeling better yesterday but I was also flared up everywhere else. My right arm and shoulder was killing me. My asthma has still been flared up and I've had to use my inhaler pretty often. This morning I went to use this new inhaler that I got since the bee incident. I took a deep breath in and something went WRONG! Oh my did I have PAIN! I had instant excruciating pain. I was in tears because it burned so bad right in the middle of my back and it came around the left side under the rib cage. It also went down my left leg again and my leg didn't want to move. I had tingling in my foot and I couldn't seem to lift my leg. This was after trying to figure out how to move since I hurt so bad. The pain has eased a little but it still hurts. I got myself to a Doctor today. A new Doctor that I am looking into. I fired my primary doctor because he was cluless with all of my conditions. He had no clue how to treat me and said "I was too complicated". I finally started looking around and found a practice and a Doctor who knows RSD and these other conditions. She was quite knowledgeable and also knows about Ketamine treatments. SHe couldn't believe how much has gone on with me in a short time. It's hard to believe for most Doctor's. She is a little worried about the back since it's again the thoracic spine area and my left leg is giving me trouble. The left leg is what I had problems with before the surgery. I'm off for another MRI..oh yippeee! I lost count as to what number this is...50? TOO MANY! With me..the Dr doesn't want to take any guesses or chances. It's getting quite frustrating!

Also, yesterday I was officially scheduled for Ketamine treatment to begin. My first treatment will be October 26th. It will be the 5 days that week and the following week for 5 days also Nov 2nd - 6th. I am a bit nervous about it but it looks like the only course available for me. My previous PT and Doctor's are all in agreeance and feel I need to do this. I want something to work! I've tried everything else and nothing has worked. I'm willing to give this a go. I just hope that it works and can give me some relief.

That's all for now. My back hurts and I have to get moving. I will post any new news.