CRPS/RSD is an awful disease that affects the entire nervous system. It's so underdiagnosed and usually takes years for a Doctor to make the diagnosis. It's a disease that causes so much pain and requires an entire lifestyle change. There is hope but not a cure. It requires a lifelong battle but you must keep fighting! I will keep up the fight..the disease will not win! I now have a great Doctor and in good hands. I have faith that this treatment will work!

Tuesday, August 18, 2009

Not Feeling Well

Well today is now Tuesday already..gosh, the days are going so quickly. The heat and humidity is not my friend right now. Yesterday was a very rough day and now I have another one today. My right hand was so swollen and I was in so much pain that is was unbearable at times. My neck weas having muscle spasms and I was trying everything I could to ease the pain and get it to stop. Nothing worked. By the evening I was ready to cry. My daughter and I went for a walk after dinner and I got one whole block and was ready to quit. I kept going though and went for a loop around (slowly) but i made it. I am trying to tend to other things around the house and the kids but it's not easy. I don't feel well right now and it's so hard to keep going. I want to hide it and be "myself" and not complain about pain and not being able to do things. I knew this morning it was not going to be a good day. I took a shower and almost passed out. I couldn't stand the water hitting my body and I got real dizzy and this sick feeling came on. The bathroom was spinning and all I could see was nothing..everything was going black. I stayed up and got done with the shower quickly then went and laid down. I just am not feeling well from the humidity and hopefully it will get better. I have a terrible headache. I just can't seem to win..either it's too cold or too hot. I can't stand any temperature it seems. This is so hard to deal with but I think I'm doing quite well. I am so glad to have the support from all of my family. I truly need it right now and I thank all of you. :)