CRPS/RSD is an awful disease that affects the entire nervous system. It's so underdiagnosed and usually takes years for a Doctor to make the diagnosis. It's a disease that causes so much pain and requires an entire lifestyle change. There is hope but not a cure. It requires a lifelong battle but you must keep fighting! I will keep up the fight..the disease will not win! I now have a great Doctor and in good hands. I have faith that this treatment will work!

Wednesday, August 26, 2009

Another Painful Day

The last couple days have been pretty rough. I've been in a great deal of pain and so swollen. I try to ignore it but it's so difficult. I try the best I can to keep myself and my mind busy. Today is another hot day which will not help any. I've had some awful attacks these last couple days. The sunlight hurts my eyes so bad which makes it difficult to go outside. I don't like lights, air, showers, to be touched, etc. It's not any fun..none whatsoever! I get upset because I love the outdoors and want to be outside but can't handle it. It's so frustrating! I've also been having a great deal of muscle spasms and I'm having some trouble walking. My gait is off entirely and I feel like I'm going to fall over when I walk. I get dizzy at times and my ears start ringing. Then I get this hot feeling all over and feel so sick. My vision gets so blurry and I can't see much of anything. I see bright spots and I feel like I'm going to pass out. I have a call into my neurologist and hopefully he will get back to me today. I have some questions for him. It seems as though they are really leaning for another diagnosis..MS (multiple sclerosis). It's another disease that involves the central nervous system. They want to look further into my eyes (optic nerves). They do not feel the damage to my eyes is from the RSD. This means more tests and more appointments. MS is another uncureable dibilitating disease. It has very similar symptoms of RSD. It just never ends....