CRPS/RSD is an awful disease that affects the entire nervous system. It's so underdiagnosed and usually takes years for a Doctor to make the diagnosis. It's a disease that causes so much pain and requires an entire lifestyle change. There is hope but not a cure. It requires a lifelong battle but you must keep fighting! I will keep up the fight..the disease will not win! I now have a great Doctor and in good hands. I have faith that this treatment will work!

Monday, August 31, 2009

A New Week Ahead

Well today is now Monday and it's almost September. Where do the days go? I was shocked to see Halloween stuff out in the stores last week already. This means Christmas stuff will be out probably next week. ACK! I'm not ready to even think Holiday's! I had a busy week last week and I'm hoping this week can be a bit more on the relaxing side. The kids started school today. All the kids are now in high school. The youngest just started 9th grade. I can't believe it! They will all be in college before you know it. I had a good weekend for once and the pain level went down quite a bit. The weather changed here in PA and it feels like October. Our high today was only 70! This morning I was wearing a robe and slippers which is a huge change from just a week ago when I was sweating first thing in the morning. The cooler weather and less humidity has been nice. I just have a problem with it being too cool now..lol. Yes, too cool. I can't seem to win. I couldn't handle the heat and now I have trouble with the cold air. I was ok in the house but the cold hand problem started up once again today. Everytime I sat at the computer, my hand would get ice cold and then things would flare up. I had to keep moving lots today. I love this weather but nothing seems to work for me and it's very frustrating. I became quite sore again by 4:00 pm which is the usual. My day is done by then. I started having trouble walking and I ache everywhere. My legs are so tight right now that I can't move them to well. This is how it goes though. I can be ok one minute and terrible the next. It's a vicious cycle. One plus today was that I could see better for once! I wasn't even wearing glasses unless I was at the computer. The glasses really didn't do much for me today. I could see the same with or without them. It's crazy how my vision can change on a day to day basis..sometimes hour by hour. Well time to get up again..getting sore. Til next time...good night