CRPS/RSD is an awful disease that affects the entire nervous system. It's so underdiagnosed and usually takes years for a Doctor to make the diagnosis. It's a disease that causes so much pain and requires an entire lifestyle change. There is hope but not a cure. It requires a lifelong battle but you must keep fighting! I will keep up the fight..the disease will not win! I now have a great Doctor and in good hands. I have faith that this treatment will work!

Friday, August 14, 2009

A Very Long & Stressful week

Today is Friday and the week is almost over..THANK GOODNESS! I've had one crazy week and it's not quite over but things have calmed down some. I have not been getting much sleep and I'm in burning pain today. My entire nervous system is out of whack today. My heart, breathing, digestive system, eyes, skin and hearing are all out of whack. I had a rough day yesterday which didn't help. I'm also still having a tough time absorbing everything that is going on with me. I am worried but I don't even know how to express my emotions at times. I have so much going on that I just want to laugh at times. I guess laughter is the best medicine so I will keep on going and still be the "happy Tammy" that I have always been. I'm not always happy though and I do hide it well. I just have so much going through my mind right now. I wish I could wave a magic wand and make this all go away! Well I have to head off and get myself hooked up to a cardiac monitor. My daughter is also wearing one today so we are a pair! She is wearing it due to her cardiac issues and I have to wear one as part of my clearance for Ketamine. They just need to watch how my heart works and my blood pressure is for over a period of 24 hours. My daughter has worn these monitors many of times so she is helping me put it on and we are hooked up together today. At least it's nice weather and we are going to try and enjoy the day!