CRPS/RSD is an awful disease that affects the entire nervous system. It's so underdiagnosed and usually takes years for a Doctor to make the diagnosis. It's a disease that causes so much pain and requires an entire lifestyle change. There is hope but not a cure. It requires a lifelong battle but you must keep fighting! I will keep up the fight..the disease will not win! I now have a great Doctor and in good hands. I have faith that this treatment will work!

Sunday, August 23, 2009

A new week ahead

It's Sunday already..wow! I had a very rough week last week and I'm hoping this week will be better. The humidity has been so high every day and it just makes things more miserable for me. It's supposed to go down later today which I'm hoping for! I need some relief! I can't seem to tolerate the heat and humidity at all and I can't tolerate cold either...man I'm in trouble! I am NOT looking forward to the winter either. I also seem to be a walking barometer. Whenever the weather is about to change, I know it. I can tell when storms are coming and the rain..UGG! I don't like any kind of weather it seems. I think a 70 degree day with no humidity would be ok. I have finally got some sleep the last couple nights which is nice. I wake up in burning pain though and have to fight my way through the day. I got some more disturbing news last week regarding my eye problems. It looks like the Dr's are very concerned about what is going on and more testing will be required. It just never ends for me. Some of the eye problems are associated with the TOS and RSD but they feel something else is also going on. Now they are thinking that this may be triggering something else like an autoimmune disease or MS. I was explained that my body has been through so much trauma in such a short time. The TOS was so bad and seems to be causing so many problems. It caused the RSD and now I'm worried that I may have something else in the works also. My immune system is a mess and my nervous system has been greatly damaged. I'm a bit scared and upset because I don't want any more bad news and another diagnosis. I can't take anymore! I am trying not to think of it right now, I am having great difficulty with my vision though and I need to have these tests done but the Doctor wants to wait until we can calm down the RSD. It looks like I have been cleared for Ketamine treatment and they are working on getting me scheduled. I will keep you posted.