CRPS/RSD is an awful disease that affects the entire nervous system. It's so underdiagnosed and usually takes years for a Doctor to make the diagnosis. It's a disease that causes so much pain and requires an entire lifestyle change. There is hope but not a cure. It requires a lifelong battle but you must keep fighting! I will keep up the fight..the disease will not win! I now have a great Doctor and in good hands. I have faith that this treatment will work!

Thursday, September 10, 2009

So Sick of the Pain

The weather is cool and rainy here in PA. It sure isn't helping me any! The weather changed too fast and I don't deal with temperature changes very well. The last week and has been rough. I've been back to a pain level of 9-10 on a scale of 1-10. I haven't been able to get it down much. The lowest it's been is about a "6". I've been back to sleepless nights also. I am up alot in the night especially with these awful night sweats. That also goes along with RSD. YUCK! I wake up SOAKED! I am soaked from head to toe then the fan is on so I'm freezing and freaking out. I can't seem to get comfortable anywhere. My hair has been falling out in large amounts again. I also feel like I have a dagger going all the way through me (from shoulder blade through my chest). My chest is tender to touch along with my neck and upper back. My eye hurt so bad last night and I could barely open it. This morning, the eyelid was so droopy, thanks to this wonderful RSD. My right eye was barely open most of the day. I stayed at home and didn't go out. I dind't want to drive or go anywhere. I tried to do some cleaning but I could only do little bits at a time. It takes forever to do things! It's completely frustrating because by the time I get done with the cleaning, I'll have to start all over again from the beginning...UGG! That just isn't fair!

It looks like I may be on the schedule for ketamine treatments the beginning of November. The Dr's office kinda had a screw up and some of my paperwork got lost. They were waiting on some of the cardiology testing that was done weeks ago. Now the schedule is full until the beginning of November. It depends now on how fast the Dr moves on this or it could be longer. I sure hope not because I'm not doing well with the cooler temperatures and winter is getting kinda scary. I'm not looking forward to it. The fall also..rain and cooler temp's..neither is a good scenario for me.

That's all for now..goodnight.