CRPS/RSD is an awful disease that affects the entire nervous system. It's so underdiagnosed and usually takes years for a Doctor to make the diagnosis. It's a disease that causes so much pain and requires an entire lifestyle change. There is hope but not a cure. It requires a lifelong battle but you must keep fighting! I will keep up the fight..the disease will not win! I now have a great Doctor and in good hands. I have faith that this treatment will work!

Thursday, August 20, 2009

In so much Pain

I am mentally and physically exhausted today. My pain level is so high and nothing is bringing it down right now. I have 2 lidocaine pain patches on and increased my meds and still nothing yet. It's so humid out and I can't seem to function. I have such a terrible headache along with muscle spasms all over. I don't have much of an appetite either but I managed to eat some lunch. I just want this to stop. I'm so tired of it. I have been holding myself together but when I have multiple days in a row with absolutely no relief, it's very hard. I feel like giving up the fight at times because I'm not winning. I keep fighting though..I must have it in me somewhere. My vision has been so bad that my eyes hurt. My face is also red and hurts. Nothing about this is pleasant. I am trying to keep myself busy so I can get my mind off of PAIN. It helps to keep busy but there is only so much I can do. I am swollen up like a Macy's Thanksgiving Parade Balloon. I might just fly away soon! I am trying to make light of this and my son tries to get me laughing. He has been making jokes today and trying to get me to laugh. He's a great kid and such a big help. Right now I need all the help I can get!