CRPS/RSD is an awful disease that affects the entire nervous system. It's so underdiagnosed and usually takes years for a Doctor to make the diagnosis. It's a disease that causes so much pain and requires an entire lifestyle change. There is hope but not a cure. It requires a lifelong battle but you must keep fighting! I will keep up the fight..the disease will not win! I now have a great Doctor and in good hands. I have faith that this treatment will work!

Wednesday, August 5, 2009

Mid week and still not feeling better

Well, here it goes. I'm going to try blogging. I'm totally new at this and still in the process of setting everything up. I have had to take frequent breaks due to having so much pain and irritability today. I am learning as I go..lol. I have been having a rough week which I was somewhat prepared for after going to the Billy Joel/Elton John concert Saturday night with my son. It was a great concert but I'm paying for it dearly. Monday and Tuesday such bad days..2 of the worse I've had in a while. Today was a little better so I tried to go out for a little bit but that just made it worse. The humidity is terrible and that makes things worse. My arms are burning so bad and my right hand isn't working today. I can't pick things up and Ikeep having these awful muscle spasms. I'm cranky at the moment so I thought I'd try to post my first blog. The kids are bored and can't seem to find anything to do. School will be starting soon! I'm having another asthma attack so better go. This is the 3rd one today. It's been getting out of control. The RSD makes it worse. I can't win! More later...