Non Stop Pain

I am super cranky, tired and in PAIN so I thought I would sit and post since it's been a while. The weather changed and keeps changing so I'm all screwed up. On a scale of 1-10..my pain level has been pretty much a constant 10 for days now. Everything hurts! I am soooo tired and feeling run down and out of it. The pain is getting to me. I can't move at times because it just hurts so bad. My right hand is so swollen that I can't even close it half way at the moment. I have been dropping things all day today. It's super windy here today and I absolutely hate wind! The wind is just BAD all around. I can't tolerate it when I'm like this. And of course it's a chilly wind. I had to go flor blood work today for the ketamine treatment. The minute the needle stuck me, my system wenr crazy. It hurt! My blood pressure has been high as well today so I'm trying to take it easy. I made pork bbq in the crock pot and it smells so good right now. I'm now getting hungry. It was a job shredding up the meat. It took me forever but I did it. I have to do things in steps. I do little bits at a time. I guess that sometimes gets me cranky and frustrated because I'm use to just doing doing doing...go go go..I can't do that anymore. I'm pooped out! Anyways that's all for now. It's going to be a chilly week..yippee! I just may pitch a tent somewhere in the desert!

Another Rough Week

It doesn't seem to end with me. When I start to feel a little better, something else happens. I am finally feeling better from the bee sting incident. That took a while. My back has been bothering me for about a week now (since the bee sting) and I couldn't figure out what I did. I thought maybe I twisted wrong or something. The RSD is causing everything to go wrong and I am also pretty weak. I did lots of coughing and it seems that the coughing aggravated my back. It kinda worried me because it's in the middle area again. It finally started feeling better yesterday but I was also flared up everywhere else. My right arm and shoulder was killing me. My asthma has still been flared up and I've had to use my inhaler pretty often. This morning I went to use this new inhaler that I got since the bee incident. I took a deep breath in and something went WRONG! Oh my did I have PAIN! I had instant excruciating pain. I was in tears because it burned so bad right in the middle of my back and it came around the left side under the rib cage. It also went down my left leg again and my leg didn't want to move. I had tingling in my foot and I couldn't seem to lift my leg. This was after trying to figure out how to move since I hurt so bad. The pain has eased a little but it still hurts. I got myself to a Doctor today. A new Doctor that I am looking into. I fired my primary doctor because he was cluless with all of my conditions. He had no clue how to treat me and said "I was too complicated". I finally started looking around and found a practice and a Doctor who knows RSD and these other conditions. She was quite knowledgeable and also knows about Ketamine treatments. SHe couldn't believe how much has gone on with me in a short time. It's hard to believe for most Doctor's. She is a little worried about the back since it's again the thoracic spine area and my left leg is giving me trouble. The left leg is what I had problems with before the surgery. I'm off for another MRI..oh yippeee! I lost count as to what number this is...50? TOO MANY! With me..the Dr doesn't want to take any guesses or chances. It's getting quite frustrating!

Also, yesterday I was officially scheduled for Ketamine treatment to begin. My first treatment will be October 26th. It will be the 5 days that week and the following week for 5 days also Nov 2nd - 6th. I am a bit nervous about it but it looks like the only course available for me. My previous PT and Doctor's are all in agreeance and feel I need to do this. I want something to work! I've tried everything else and nothing has worked. I'm willing to give this a go. I just hope that it works and can give me some relief.

That's all for now. My back hurts and I have to get moving. I will post any new news.

Not a great week

Wow, today is Friday already. I just can't keep up with the days. What's weird is that it's not like I do a whole lot in my day but yet it still flys by. I don't even know what day it is half the time because most days are the same for me.

This week has sure been a bit tough since the bee sting. Monday and Tuesday I just knew something wasn't right. I was still having trouble breathing and wheezing quite a bit. My lungs HURT! I was itching like crazy still and I was swelling. My tongue was also swelling off and on which had me concerned. Monday night I had trouble swallowing. Tuesday I had the same trouble and felt I better call my Doctor. I called my allergist Wednesday morning and they had me come right in. The Doctor was very upset to hear that I was discharged from the hospital without the appropriate treatment. I had a SEVERE reaction as he put it and needed to be put on prednizone because once the epinephrine wears off, the reaction starts all over again (which it was doing). He told me that I should have used the epipen again sunday night or monday but I didn't know. I had terrible discharge instructions from the hospital. I received all kinds of instructions from the Doctor and medications to take. I now have an emergency sting kit also. This is a serious matter and it scares me a little. I don't want to go through this EVER again. I was told that each time I get stung, the reaction could get much much worse. YIKES! I have to be careful and I guess the bees are still out until October. I hope they stay away from me!

I'm getting somewhat frustrated now at this point. I am so tired of PAIN! It just never goes away. I am also tired of taking pills..medication..I'm so sick of it! I have to remember my meds everywhere I go. I just get tired of it all. Also, the medication is causing some weight gain. I was working so hard at losing weight before all this mess started. I was proud of myself and now I feel like I'm falling apart. I can't seem to do any exercise. Walking is about it and I can't even go to far before I get tired and the pain gets worse. I tried a few minutes on the Wii fit with some basic steps and it flared up the nerves! I was freaking out afterwards and had to try and calm everything down. I'm now sore today. The hardest part is not being able to do the things you want to do! I have always been an active person and sitting doing nothing is so not me! Also, I just can't sit..I'm uncomofortable sitting. I can't sit for long, stand for long, walk for long, etc...UGH! I can't win! I guess I'm a bit frustrated..sorry. I'm venting. I'm also upset because so many things flare the RSD. Certain foods, beverages, etc. Of course all the things I like. Caffeine is really getting it to flare so I try and avoid it now. Also spicy food are not good and I love spicy foods! Not fair! I'm having to pay attention to so many things and learn to change my life in so many ways. It's NOT easy but I'm doing it. I just hope I can get some relief from this nightmare.

I have officially been cleared for ketamine and I'm awaiting the call to give me a date. I will keep you posted as soon as I know when that will be.

I'm hoping this weekend will be a much better weekend!